Monday, May 17, 2010


The lupus patient is a bewildered person besieged by physical, emotional & economic problems. The patient become ruled by fear-

fears that other will found out that one is struck by a mysterious illness, fear of being cut out from the human flow of life, fear of not being able to do things one was trained to do.

One gets worse and then better without obvious cause. And there are times when the patient is the only person who is sure that they are really sick, but does not know what is wrong. We need to know what we are suffering from, and we need to know what we are dying of. I feel that our families, our friends, the Social Security office, and our government on whom we rely for funding for research do not understand what lupus is and what it does to a human life.

I feel strongly that, without more understanding, we cannot be properly treated, so we can have a better quality of life and live with dignity and self-respect.

-exactly how I feel right now.


I usually learn to wake early in the morning feeling happy as a new day being a gift for me. Than after more than 7 years battling with SLE I suddenly feel lost.

It's an imaginable feeling. Not sure of everything. Fear runs in my every vein. I am scared of not knowing what actually am I doing and most of all will this thing I'm doing will eventually lead me to happiness?

p/s: I want to shout for help,but then I lost my voice.Allah,please help me...


MaRdHatILLah(Fatahiyyah) said...

anum..bnyak2 kan doa yer...setiap ujian pasti ade hikmahnye..k.yong ni walau x itimpa sakit tp k.yong terpaksa menghadapi fitnah dunia yg sgt mencabar..dan menggugat sebuah kehidupan...kadang2 kt kn ingat mgkin ALLAH nak kt selalu ingt pada DIA..sebab DIA nk dengar rintihan kita..

nurmalasari said...

Can you explain the meaning?

I understand less ...

anumz sarah said...

Salam kak Yong,

Syukran anum dipertemukan dgn rakan2 seagama yg banyak memberi nasihat dan dorongan sepanjang anum mengahdapi ujian hidup. MAklum,anum manusia biasa yg kdg2 jatuh dan tak bermaya dlm menghadapi dugaan kehidupan. Berat benar ujian kali ini. Tetapi,Allah itu Maha Kaya, Maha Berkuasa,tahu sungguh Dia akan segala hal tentang makhluk ciptaanNya.

InsyaAllah akan digandakan segala usaha dan doa pada yg Esa,moga2 Dia menyembuhkan dan memulihkan. Ameen....

anumz sarah said...

Salam nurmalasari,

You might want to check out Systemic Lupus Erythemathosus disease in the internet. Google provide most easy to understand link and website to understand Lupus disease.

Just type Lupus/SLE at Google search engine. It will help you to understand. Thank you so much for taking the time to read my blog and give comment.

Your effort are highly appreciated.