SPEECH BY HENRIETTA ALADJEMThe lupus patient is a bewildered person besieged by physical, emotional & economic problems. The patient become ruled by fear-
fears that other will found out that one is struck by a mysterious illness, fear of being cut out from the human flow of life, fear of not being able to do things one was trained to do.
One gets worse and then better without obvious cause. And there are times when the patient is the only person who is sure that they are really sick, but does not know what is wrong. We need to know what we are suffering from, and we need to know what we are dying of. I feel that our families, our friends, the Social Security office, and our government on whom we rely for funding for research do not understand what lupus is and what it does to a human life.
I feel strongly that, without more understanding, we cannot be properly treated, so we can have a better quality of life and live with dignity and self-respect.
-exactly how I feel right now.
TEA IS NOT COFFEE
I usually learn to wake early in the morning feeling happy as a new day being a gift for me. Than after more than 7 years battling with SLE I suddenly feel lost.
It's an imaginable feeling. Not sure of everything. Fear runs in my every vein. I am scared of not knowing what actually am I doing and most of all will this thing I'm doing will eventually lead me to happiness?
p/s: I want to shout for help,but then I lost my voice.Allah,please help me...